I chronicle my life to document the progression of my Alzheimer’s disease.
I do it to give hope to others.
Make the diagnosis early as I did in December 2017.
Then don't choose suffering or struggling.
"Who wants to live forever" Queen
Triglyceride 172 Non Fasting 113 Non Fasting 74 fasting
Total Cholesterol 135 175 154
LDLc 51 86 76
Remnants 24 18 15
HDLc 50 66 63
HDLp 640 816 1033
Adding Zetia did decrease all my numbers except LDLp
Perhaps because I just returned from a 12 day Mediterranean cruise?
My weight actually improved by 2 pounds on my return.
HDLc decreased by 3 points despite being on the Beverage Package. 6-22-19
Weight 210.5 pounds
Difficult to tell if my memory improved.
I suspect not.
I will add a half dose of atorvastatin 10 mg (5 mg) and check it again.
I really want my LDLp to be less than 1,000.
I think the benefit of adding a low dose statin to get LDLp less than 1,000 is much more important than questionable memory improvement.
As I have written memory is overrated.
"Together they present a picture of
a man who passed into the state in which “ideas and consciousness cease to be” without the slightest resistance. Two sentences from his valedictory have echoed through the ages. “All compounded things decay. Work out your own salvation with diligence.” From:
Smith, Huston. The World's Religions, Revised and Updated: A Concise Introduction . HarperCollins. Kindle Edition. Last night I gave a short speech at my son's rehearsal dinner. I wrote it last week and unlike others I did not read from an iPhone script. I wrote down the title of each paragraph and was able to remember from that. I can still do my two memory palaces each day. 55 countries of Europe and my top trips. My first memory palace link My short term memory and math skills are bad. This blog is to help people learn how to get into the depths of an advanced lipid testing. The worse thing that can happen to an Alzheimer's patient is to get a stroke or heart attack, not a little worsening of memory. With stress and hurry I make quick and bad judgements. The Alzheimer's society gives an easy meditation technique. Shaa Thaa Nhaa Mhaa
Father's Day dinner.
Two days ago I fell on my face with a subsequent large black eye.
Today I can open my eye easily and have no pain.
The cosmetic part can be easily covered up with sunglasses.
I go to my son's wedding next week. I will probably need makeup for the photos.
Alzheimer's patients are known to have sudden sharp declines in mental ability.
I think that is mostly due to strokes.
My last systolic blood pressure was 100.
I also keep my cholesterol very low.
My last Hgb A1c was 7.8.
Thus I am very optimistic.
Hence we just book another cruise to Japan in Feb. 2020.
I an quite happy and having a great time.
I just finished my yearly testing for the KUMCR research trial which is a non-treatment.
It was three days of testing.
3 hour cognitive exam
Tau Pet Scan.
I enjoy doing it as I feel I am paying it forward.
They give me $100 each year as compensation.
It gives me a sense of accomplishment. Day one
I went to help a carpet cleaner take a bookcase out of the basement, out the back door and up the hill to the street. It was arduous for me but I thought I had it, until we dropped the bookcase while I was still walking. I guess I had so much momentum I just kept going without stopping, I was moving forward and heading to the ground. I took 3 steps trying to slow down and regain my balance instead I went faster till I walked off the grass crashing into the concrete driveway. I have had a few falls in the last two years due to my poor balance. This was a very hard hit on concrete with my face bouncing off the ground. I was dazed but got up and finished some of the cleaning work. I had a slight headache. I asked my partner if I was bleeding. He said just a little. When I looked in the mirror I had a small scrape above my left eye with little bleeding. I put a bandaid on it and went back to my research. Later when I got back up to check on the carpet work, he looked at my eye and was sorry to see the eye was swelling up. I looked in the mirror. I probably missed my best window of opportunity to prevent the swelling with ice. I put iced peas on my eye but the swelling became much worse. Very little pain. I am on a blood thinner so I was worried about getting a sub-dural hematoma. I told my wife to call 911 if I pass out. There was no bleeding into the other eye so I was not worried about an orbital bone fracture. There was also no pain on palpation of the bones.
I told my wife I can't do this work anymore.
I am too light for heavy work and too heavy for light work.
In truth it is the result of my poor balance that has worsened since my diagnosis of Alzheimer's.
The damage of the fall could have been much worse.
Fractured hip is high on the list.
Just as I gave up my medical license and let my wife drive most the time I need to keep adjusting my behavior.
I go up and down the basement steps 8 times a day.
I must stop going down the steps carrying items in both hands.
As my Dad said years ago, "always go down steps with one hand on the banister".
July 9, 2018
I had my first cognitive testing at the KUMCR Alzheimer's Center. It took 3 hours.
It was stressful but not as bad as my Neuropsychological Assessment in Floridadone on
at three different dates.
You can see the results of myFlorida testing in my book: I Am Waiting for When I forget I have Alzheimer's. YEAR ONE.
I had my second cognitive testing at the KUMCR Alzheimer's center. Again it took 3 hours.
Interesting, I thought I did better on the test today than I had on the prior tests.
I was on Namzaric already when I took the first KUMCR cognitive.
I took todays test and had less stress than the prior tests.
My palms were sweating after the first hour which I don't remember having before.
I was a little warm however my concentration was intense.
I have not taken Atorvastatin 10 mg since 4-2-19. LAB results off statin replaced with Niacin link
Perhaps that helped me with this test?
I suspect I did better after reading Moon walking with Einstein.
I learned to build memory palaces by reading the book.
Those techniques are too slow to apply for the short term memory tests.
However I did learn enough about improving my associations with the list of words by being more imaginative in making the quick tags.
I told the tester most people can only remember 5 to 9 words on a list. She seemed surprised.
She would come back to the list periodically and I found each time I remembered more words.
I think I ended up remembering more than 10 on the list on the third effort.
This success has given me hope that I may remain in early phase of impairment for years more.
I hope now to be able to write my YEAR 3 version next year.
In any event after the difficult testing I felt I had done better than one year ago.
I took my second one hour MRI at Hoglund Scan center at KUMC. Again it was not so arduous this year.
Clearly because I used my two memories palaces to pass the time
I would think of my list of 55 European countries.
Then I would think of my list of top 16 trips.
Finally I would use the relaxation exercise taught by Alzheimer's Society.
I would chant