Lack of paitence for both of us

My wife has guided me through the recent Norway cruise. 

It was not much fun for me as I had trouble navigating around the ship on my own.  It was was worse for my wife as she worried so much about me getting lost.  Especially now at the Moxie hotel in Dublin, when I go virtually across the street to buy some Magnum ice cream at the local  

grocery store.  I admit I get turned around easily and lose my way. 

I don't panic and ask for directions.  A panhandler heelped me out the othe day.  Once a day we get into a bad argument.  I'm not sure why it happens.  In my opinion I think it is because she gets so angry with me  so quickly.  Yesterday she was trying to fit 3 big soda and water bottles into my backpack.   I got impatient and whiped the backpack off me which almost hit her and made her more angry.  The mutual anger just escalates.  Almost a daily occurrence when we go out. 

In the hotel room she takes great care of me.  Much more patient in this controlled setting.  She is very viligent as we cross the streets with traffc. Great deal of stress on her. 

Update on trip to Dublin, Ireland

 We had a great lunch today. 

The food was better than the 15 day Ocean Viking Cruise.  Surprising.  I thought my taste buds were failing but now I realize the large ship can't achieve the same quality as a small restaurant, at least on this trip.  Especially as always with resoto.

Again surprising the beef was so much better in this Irish restautant.  The taste was amazingly good.  

I was so happy to find a great meal again. 58 Euros including good tip. 

Last night we went to a Irish restaurant, Flanagan's and I ate an Irish Lamb stew.  It had very little flavor.  

I am still on my ice cream diet.  I am very pleased with the Magnum bars here. 

It was partly sunny today in the fifties. 

I bought a skull hat for 15 Euro.  

I really need it to the wind, which I find very chilling.  

 

Letter to my kids informing them of new adjustments to my Alzheimers

 Dear Luke, Sarah and Andrew,

Finishing up on the Viking Ocean Cruise.

I rarely say this about a cruise but it has been disappointing.

The last Viking river cruises we took in France were excellent in comparison. 

Of course I also get tired since my SAH (bleed).

I have been sleeping longer to try to rectify that.  

I also have skipped a couple of tours.

We are in Canterbury and I feel well rested and the sun is out so I am planning on taking the tour today.

The cold wind on prior tours was rough on me. 

I think my palette (taste) has been affected by my SAH. I find red and white wine harsh  on my tongue.

I have been disappointed with what is supposed to be their best cuisine.  

We are planning to cancel some of our future cruises.  

I would rather stay home in Topeka and do my routine. 

Hence we are adjusting to my disease. 

No big disappointment felt other than it is annoying to not get the hang of the ship landmarks. 

Love,

Dad

Major drop in Cognition after SAH

 I fell and hit my head with loss of consciousness.

Subarachnoid hemorrhage link,

On my present cruise I can't remember the layout of the ship. 

I get lost easily on the ship.

This is something new for me.   

I was always good at finding my way around.  

I hoped that as the bleed reabsorbed I would do better as I did with my subdural hematoma  link.

As I overdid exercise with my subdural, I may have pushed too hard with my recent tours.  

I cancelled a tour for myself on belfast, and liverpool.  

Instead I slept late and rested,  sleeping on and off till 3 PM.  

I think it made a difference for me as I felt up to taking the Wales tour today.

It pays to gave a son that is an MD w a degree in medical genetics

For example:

For the MTHFR gene, I went to this webpage, https://www.geneticlifehacks.com/mthfr/ to find the SNP rs1801133.

I then went to 23 and Me Raw Data Search, https://you.23andme.com/tools/data/ and pasted SNP rs1801133.

Per Genetic LifeHacks: 

G/G: typical *
A/G: one copy of MTHFR C677T allele, enzyme function decreased by 40%
A/A: two copies of MTHFR C677T, enzyme function decreased by 70 – 80%

I looked up your SNP and it is A / G  

So it might be worthwhile to read about it at the link above.  

Hope this wasn't too complicated,

Luke

This is a complicated subject. 

Folate link

I got lost at the Bergen airport yesterday.

 I have never gotten lost at an airport before. 

Yesterday I went to the bathroom at Bergen airport.  

I got turned around and could not find my back to where my wife was.

This clearly indicates a cognitive decline for me.

I didn't panic, I sought help from a airport official. 

It did distress me. 

My wife laid down the law and said I can't go off on my own anymore.

Of course being off line with my phone didn't help.  Ginger doesn't want to pay ten dollar/day phone fee.

All is well today as we arrived in Norway.

Sleep was not bad on first class where we can lay flat.  

We are beginning to think we can't do these long trips anymore.

The blood in my brain has completely reabsorbed.  

I am hoping to have some improvement

April 8, 2022

At the Hotel Norge by Scandic  in Bergen.

On prior trips here we stayed at the old port area.

I was trying to bus my table for breakfast.  

I knocked over my hot cup of coffee and it was hot, but more ambarrassing than hot.  

Today I felt I may be ready to be admitted to a nursing home

 My wife went out to lunch.

I feel completely lost today.

Much of it is due to my recent subarachnoid bleed from a fall.  August 2, 2022.

The blood has since be absorbed.  

It has affected my memory.

My Alzheimers is worse.

I can't find my glucose monitior. 

Very disturbing to look and look and beinging unable to find it.  

My sugar has been running over 200 fasting the last week.  Mostly due to ice cream intake.

If I can't find things in the house, I 'm in trouble. 

Usually if I look around enough I can find stuff. 

My wife left me a note this AM stating she would be home by 1:30 PM. 

Then she called around 1:30 PM to tell me she is running late.  It's 2:30 PM now, I am afraid to say anything about because she had a scrary rage reaction to my complaints that I felt she was helping me enough as she is on the phone so much.  I told her her angry outburst was at the point of abuse especially when she linked it to puting me in a nursing home.  She laughed at that. 

Today has been very difficult on my own as I can't seem to find things.  I can feed myself. 

Now I am afraid to tell her how badly things we for me today at home alone.

She is exhaused and has a short temper as a result with me

She also has poor sleep.